Wednesday, April 28, 2010

Whew, Wild Wacky Wonderful Wednesday

Quick report to tell you all that Chrissie is hanging in there.  Haven't left her side, so that's why there's not been any updates from me.  If anything ever goes wrong, I will always notify you via the blog.

For now, just keep praying that everything will work beautifully as God intended.  God is hearing and answering your prayers.  The CO2 level has now dropped to 50, and anywhere between 35-45 is normal.  Praise God!  Her oxygen sats are at 93.  She is still on an oscillator (a specialized ventilator) that is blowing air and oxygen into her lungs, but her heart is working totally on its own. 

This is truly nothing short of miraculous.  Even Dr. Kupferschmid said, "AMAZING!", as he affectionately rubbed Chrissie's head with his hand.

Have lots of wonderful stories to tell with an amazing testimony of Dr. Porisch's. 

God is really showing Himself as Jehovah Rapha in such a mighty way.

My help comes from the Lord.  Thank you so much for everything.  I feel like every one of you is a family member, and if you've accepted Jesus' gift that I've begged each of you to receive, then you ARE family and we WILL meet one day in Heaven where you'll stand in the long line of prayer warriors to dance with Princess CHRISTyn Joy!  For now, we plan to take her home and dance for a long, long time.

Keep praying that Chrissie blood pressure, oxygen sats, carbon dioxide sats, heart rate will remain stable, and that her heart and lungs will work perfectly as God intended.  We can't let up on those prayers.  (Chrissie has been in this same position before...Monday, April 19 until early morning Thursday, April 22 when Chrissie's heart stopped.  There's still so much that can go wrong with so many complications possible, but with God, all things are possible.

Keep praying beautiful army!!!

Looking forward to Thankful Thursday!!!

41 comments:

Jenne said...

I've been watching for an update. So glad that she's hanging in there. I'll keep praying!

Jenne

Jill said...

Hang in there Lorraine. Praying all day for Chrissie. She certainly is a testament of faith and miracles.
Jill :)

Momma Chae said...

Ahh, what a wonderful report! I have been following all day, praying and anxious for good news. :) I forwarded your story to every prayer-minded friend I knew. I hope you all find rest tonight and a bright new morning tomorrow.

Anonymous said...

AMEN!!! Thank you Lord.
ThAT's what faith can do...
Maryann Foster

Unknown said...

I stayed up just for this update! Oh Thank Heaven's!!!! I will keep praying!

Renee' said...

Our God is mighty to SAVE!! I have been refreshing like crazy and waiting for an update so I could go to bed! Love technology that brings brothers and sisters in Christ together across the world.

Corrie said...

looking forward to seeing pictures of your chrissie dancing in this life....and yes, also looking forward to dancing with her on the streets of gold.

praying God's healing hand on his precious child.

Unknown said...

Ahhhh...I just exhaled for the first time all day! Thank you for this update before I go to bed and say my final prayers for the day!

You and your husband are a blessing to so many! You are able because of Him - His grace is enough - His love is unfailing - His words are truth - His promises never broken!

Love and blessings,
Jill

Lynette said...

In Christ alone...prayers going up from Orlando.

Unknown said...

Truly Miraclulous! I've always secretly wanted to live in Jesus' time. I wanted to know first-hand what it was like for Jesus to heal and work miralces for all to witness.

Thank you Jesus, I am a witness today!

Continuing to pray for your sweet-hearted babe.

Kathleen said...

PTL! Now I can go to bed and sleep. I have been so worried. I know we don't even know each other, but I have followed every step of your journey. Someday we will all be family in heaven.

Oh well, hey! said...

Your daughter (and your family) have taken a very special place in my life and in my heart. I think of her often and lift up prayers on her behalf. Little things that I would rather NOT do - like run my last lengths I did for your little princess because she couldn't. She is a beautiful little girl and from all you share truly a fighter - may God continue to bless your lives abundantly and give you all strength as your two step turns into an all out fiesta!

Ellen said...

Lorraine, thanks for taking the time to update everyone. I know a minute away from your child is a minute too long. I know many of us, too long deep breaths of relief at this report. Thank you for the relief - not that we will let up on the prayers! Tell Matt that although we are writing to you, we are of course including him in all we say and all we pray. I amazed at the strong man of God he is. Yet I am so touched by the gentleness in him as he looks at his beautiful daughter and soothingly rubs her head. I know you are both relying on each other and this is where we see the beauty of God's wisdom in a 'help meet'. May God help you and meet you both in the midst of all this. Bless you!

amyl4 said...

This news has me in tears, tears of JOY! I have been praying and praying for Chrissie. God is Good! Definitely will keep praying for that little sweetheart of yours! What a miracle she is!
Amy

Sabrina said...

Praying for you all, for Healing for Chrissie, for faith, wisdom to trust in the father's plan for Chrissie's life, and for the wonderful team of doctors and nurses caring for Chrissie

Lisa said...

Praise Jesus, thank you for your mighty presence. Thank you for showing everyone just how Mighty to Save you are. Your Grace and Mercy has been so big, so amazing so wonderful. Praying for healing with Miss Chrissie's lungs and heart, Lord please continue to hold this child and hold her vital stats where they need to be, this sweet baby has been asleep long enough.
Make no mistake, GOD has never taken his eyes off Chrissie or her family not even for a second during this trial, Thank you for your Faithfulness!!! YOU ARE MIGHTY TO SAVE!!

Anonymous said...

Praise God!!!
Hang in there Chrissie!!!!!!!!!!!!

God Bless!!!

Shannon said...

Lorraine,
Praise God for her beating heart...all on it's own!!!!!! Oh Praise God!!! Praying for an uneventful night of steady progress and that JOY will come in the morning!
Hugs & Prayers,
Shannon

No Greater Gift Mom said...

Praise the LORD!! Standing tall amongst the others that are in HIS army raising your sweet angel up.
In Him,
E

Lorraine Fuller said...

still praying! God does not rest or sleep, He is keeping watch at her right hand all night.

"Are These Kids All Yours?" said...

Whew.......I was soo worried, and am so glad you posted!!!!!!!!! We will NOT LET UP on our prayers and petitions. She is such a miracle and we are so excited that God has shown HIMSELF through her & your family. PRAISING JESUS!!!!!!!!

Anonymous said...

Thank God!! as I sit here in tears, I mean tears of joy. Thanking God and Praying that he keeps that healing hand on her, thank you Lord, we know what you can do now we are praying for a full recovery in Jesus name Amen Glory be to God!!!!!!!
That little Princess is a Trooper!!!

Tears of Joy from KY

Lori said...

PRAISE GOD that her CO2 levels are dropping to where they need to be, that her HEART IS BEATING ON ITS OWN--THANK YOU LORD --and YAY Sweet Chrissie!! You are such a Spirit Filled little fighter, darling girl! You are still and always in my prayers as is your beloved family! I hope you dream sweet dreams tonite, Princess Chrissie! Dream of being held in YOUR momma's arms and dream of DANCING with YOUR daddy and playing with your brothers and sisters! Lori

Kari said...

Sending prayers for Chrissie!

Sarah said...

Praying right now.

G said...

Prayers, Prayers and more prayers. I am so glad she is fighting and moving forward.The photo of her with the big tear coming out of her eye's will forever be embedded in my mind. Come on Chrissie, come to stay with your early family!

The Armstrongs said...

Continuing to pray for your family. So aware of the songs on the radio since hearing y'all's story. It seems every one is written to remind me to pray for your tough girl. I check to see if there are updates so many times a day I cannot even count. When you'd posted about the 3:30 deadline today for coming off the ECMO machine it was around 3:00 I guess and I got so sick to my stomach I couldn't work anymore and just had to leave the office so I could pray for Chrissie's little body to work. As I prayed, my chest began to ache. I felt like my heart was empathizing with hers. I am in awe of your spirits as you've been through this journey. I long for you to all go home to the ranch together. And I don't even know you! Only GOD Himself can accomplish that. Thank you for allowing me on this road with you. Will keep praying!!

Kat said...

God is Miraculous and Amazing! I don't think it can even be fathomed how much your precious blessing is touching others out there. We continue to drop to our knees praying for sweet Chrissie.

kate said...

Thank you for taking the time to update. I was hoping you were right with her. So glad to hear that. Praying for peace for her. I know it breaks your heart to see her like that, but it is awesome to see God working!!! Bless you guys!

Sarah said...

Lifting Chrissie up in prayer tonight. Specifically, I am praying Psalms 124 for her...

Cassie said...

I've been praying for your precious Chrissie and I am so excited to hear that she is doing so well! I will continue to pray for her.

Debi said...

Thanks for taking the time to update! Praising God for the good report. Every beat of CHRISTyn Joy's heart declares God's power and glory. Believing God with you for a full healing.
Love and hugs and prayers,
Debi

Shelley said...

Praying....in the body of Christ we are one, even if we haven't met yet!
Each time I pray for Chrissie, the picture in my mind is of Jesus taking the hand of the little girl in the Bible and raising her to life!

Adam said...

Prayers for your angel Chrissie!

Psalm 139:5
"You hem me in—behind and before; you have laid your hand upon me."

Psalm 139:15-16
"My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be."

I've prayed over this verse Ezekiel 16:6 ""'Then I passed by and saw you kicking about in your blood, and as you lay there in your blood I said to you, "Live!"", and will continue to do so.

God continue to hold you and your beautiful daughter in His hand!

Kat said...

I was just talking to my husband about how hard it is NOT to believe that God is going to fully heal Chrissie. Usually when it comes to praying for health I am a total chicken. Not so with Chrissie. She should not have been alive 2 years ago, 2 weeks ago, last wednesday or even today but she is! After praying with you through her adoption and again through this surgery, I am excited each time I open up your blog because I know God is doing incredible things in your family.

We prayed and celebrated at my bible study today for Chrissie. I'm looking forward to celebrating God's healing again next week. Such a testimony! Did I mention there are a few non-believers and new believers in my group? My heart is so full of joy right now, I probably won't be able to sleep!

Marianne said...

So thankful that Chrissie's heart is working on its own. Our God is an amazing God. I am praying that Chrissie will remain stable through the night and hopefully you and Matt will be able to get some rest as well.

Johanna said...

Yeah! Wow! I have been anxiously praying and watching your blog today for updates. God is SO good! I pray for continued success!

Anonymous said...

Oh, Lord our God we pray for this child who has come so far with your grace. Continue to heal her so she can be with her new family.Amen

Anonymous said...

Hello, good evening. I was just checking in on my 2 yr daughter when I heard about your daughter Chrisse's story over the radio.

I feel like I am waiting with you in the waiting room, pacing the sterilized white hospital floors, and trying to keep back the tears which make you choke when you try to breathe. I am feeling your pain on a personal note.

If you will let me, I wanted to share my personal story with you. My little 9 year old brother underwent the same procedure which your daughter is going through right now. He wasn't as fortunate as your daughter is because the doctors kept telling my parents that the heart murmur would eventually close up on its own but it didn't. It made matters worst because when he had the surgery done, the heart surgeon discovered that the 1 mm murmur developed into a 10 mm murmur and shredded some important pieces of his lung. Because of the sensitivity of the time that my little brother's heart had to be stopped, the surgeon wasn't able to repair the lungs.

Despite all this though, my mother like yourself never lost faith. You are a very strong and courageous woman. As a mother of a special needs child myself, I know that this path we are walking isn't easy or at times, seems fair but I will hold you and your daughter Chrissie up to our father in heaven, in my prayers and heart.

These children are so resilient, with continuous love and prayers, they show us what they are made of. My little brother has recovered from the surgery and is now making it his mission to be a boy.... with a great testimony.

I hope that I didn't take up too much of your precious time. I just wanted to let you know that you are not alone in your time of need. We will pray for your precious daughter tonight and every night. Thank you for sharing.

Cory said...

We are continuing to pray here!

Anonymous said...

Your story is amazing. The bravery your whole family is showing is nothing short of inspirational. Thank you for sharing.

I've been in "neutral" spiritually for a long time. Your blog is stirring things in my heart I haven't felt for a long time. Thank you.

For Chrissie, I'm praying...for the first time in years.

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