Wednesday, April 28, 2010

They're going to do an echo and try to bridge (turn off ECMO) while watching her heart under ECMO to see what the problem is.  They're thinking that the blood isn't flowing in the right direction in her heart.  Just spoke to Chrissie, and she raised her eyebrows at me again when we claimed Ezekiel 16:6-7a over her.  Chrissie is fighting, and she's looking forward to her LIFE party!!!!!!!!!!!!!

Chrissie's feet are swelling.

She's still in there, still raising eyebrows in response to things I tell her in her ear, still crying her crocodile tears.  (This photo was actually the other day, but she gave me the same tear just moments ago.)

Bridging again now.

23 comments:

Anonymous said...

~Oh sweet sweet girl... We are here with you! We are holding you up to the LORD...
Maryann Foster

Anonymous said...

Praying for you now!

Mom to 9 Blessings! said...

Lorraine - I'm going to be praying with our children all together again for you, the doctors, your family and CHRISSIE to be risen in LIFE today! We are praying that you are all held in the peace of God that surpasses all understanding!

That photo of her tears streaming down her cheek is beyond anything more precious than I have ever seen and the hand of God so alive that it is breathtaking!!!!!!!!!

On my knees!
I love you and can't wait to meet you all in person some day!
Jill

Matushka Anna said...

Lord have mercy. We are unashamedly begging you...

Shannon said...

Lord please, save this sweet baby girl...use Your mighty to save hand and heal her heart for Your glory!
Shannon
**** I have to go and get the kids from school but am still praying!!!!

Anonymous said...

praying like crazy for the Great Physician to heal your precious little girl!! Father, heal Chrissie and uphold her with Your righteous right hand!

Suzanne
Grace Covenant Church
Arlington

Jodi said...

I WISH she didn't have to go through this, poor little thing. I feel such love for Chrissie and I don't even know her!

Still praying.

Kritter Krit said...

These pictures of your sweet girl! That huge tear rolling down her cheek - I'm just bawling.

On bended knee.

Lord, please, we beseech you, heal Chrissie! Comfort her parents and give them supernatural peace and strength. Fill the doctors with wisdom and guide their hands. Clear the confusion and answer the questions they need answered to help get Chrissie moving the right direction. Let this little girl live to tell stories that bring glory to You. Let her life be a testimony to your power and grace. Please, Lord. Let us be witness to yet another miracle - the ultimate miracle, Lord. Enable her to come off of ECMO, Lord. Heal her heart and lungs, Lord. Be her life support. Let her make great strides for you this afternoon, Lord, please.

Oh my gosh...as I'm sitting here praying...Chrissie's song JUST came on the radio. It's playing RIGHT NOW. "What Faith Can Do."

Oh, man. Crying hard. I'll stay right here, on bended knee. Waiting for your next update. We love you guys. We love your little fighter. All over the world, we're lifting you up in prayer. Hold on! Next on the radio, "It Is Well." Whatever my lot, thou hast taught me to say, it is well with my soul. Amen.

The Gotch 5 said...

No words only prayers and tears right now. How can you hurt so much for someone you don't even know. Motherhood is a precious bond I guess. The picture with the tear is breathtaking. God is with her and she knows that...he is with her always. Praying over her now.

Rachael. said...

oh my gosh that tear is breaking my heart! Jesus please do a miracle in the precious baby girl!

Do abundantly more than we can ask think or even imagine!

May that tear represent her love for her Jesus, and everyone that comes in there to work on her feel his presence, and be touched!

Praying with you... Let's build that bridge!!!

Wendi Taylor said...

I just went back through your caringridge site and read your post about her adoption. I hadn't read that before when I posted my last comment here. God DOES have a plan for her... he did not move mountains in days to bring her here to abandon her now. I absolutely believe that and claim that promise as I lift her up in prayer to him.

Anonymous said...

Godspeed, dear Chrissie. Godspeed.

Lorraine, I have been following all day after connecting to your blog from a forum post on RumorQueen. Prayers being lifted from Milwaukee.

Jennifer

Are These Kids All Yours? said...

PRAYING - NOW!!!!!!!!!!!!!!!!!!!!!!!!!!

Traci said...

Oh my gosh those tears are getting to me BIG TIME!! I just went to Ezekiel and read those verses and lost my composure....PRAYING hard for you Chrissie girl!! LIVE CHRISSIE, LIVE!!! Tell her to get up and live in Jesus name! Has she been annointed with oil yet? Praying hard for you guys too! I wish there was more that I could do!

Steiners! said...

Oh God of the universe would You intervene for this child of Yours NOW and bring healing to her heart and lungs. Amen.

Pete, Alison and Charlie said...

We are thinking of you all constantly, and praying so hard for your sweet girl.
Our son has a major congenital heart condition too (hypoplastic left heart syndrome) and just had his third open-heart surgery, so we really feel for you.
Keep fighting, little Chrissie. xxx

Lori said...

Still praying... That big tear sliding down that precious face brings me to tears for her. Lord, please I beg of You heal this little angel, Chrissie... Guide every beat of her heart, fill her lungs with perfect oxygen levels...work Your Miracle that is Christyn Joy Patterson! Lorraine this may be a dumb question given all the machines she is hooked up to..but I am thinking of how beneficial it is for infants, preemies etc. Is there ANY way they can place her in your arms so you can hold her?? Hugs and prayers, Lori

Barb said...

This was posted on one of my message boards today. Thought I would share it and hope it brings you some encouragement.


Quilt of Holes

As I faced my Maker at the last judgment, I knelt before the Lord
along with all the other souls.

Before each of us laid our lives like the squares of a quilt in many
piles; an angel sat before each of us sewing our quilt squares together into a tapestry that is our life.

But as my angel took each piece of cloth off the pile, I noticed how
ragged and empty each of my squares was. They were filled with giant holes. Each square was labeled with a part of my life that had been difficult, the challenges and temptations I was faced with in every day life. I saw hardships that I endured, which were the largest holes of all.

I glanced around me. Nobody else had such squares. Other than a tiny
hole here and there, the other tapestries were filled with rich color and the bright hues of worldly fortune. I gazed upon my own life and was disheartened.

My angel was sewing the ragged pieces of cloth together, threadbare and empty, like binding air.

Finally the time came when each life was to be displayed, held up to the light, the scrutiny of truth. The others rose; each in turn, holding up their tapestries. So filled their lives had been. My angel looked upon me, and nodded for me to rise.

My gaze dropped to the ground in shame. I hadn't had all the earthly
fortunes. I had love in my life, and laughter. But there had also
been trials of illness, and wealth, and false accusations that took from me my world, as I knew it. I had to start over many times. I often struggled with the temptation to quit, only to show me how to muster the strength to pick up and begin again. I spent many nights on my knees in prayer, asking for help and guidance in my life. I had often been held up to ridicule, which I endured painfully, each time offering it up to the Father in hopes that I would not melt within my skin beneath the judgmental gaze of those who unfairly judged me ..

And now, I had to face the truth. My life was what it was, and I had
to accept it for what it was.

I rose and slowly lifted the combined squares of my life to the
light. An awe-filled gasp filled the air. I gazed around at the
others who stared at me with wide eyes.

Then, I looked upon the tapestry before me . Light flooded the many
holes, creating an image, the face of Christ. Then our Lord stood
before me, with warmth and love in His eyes. He said, 'Every time you
gave over your life to Me, it became My life, My hardships, and My struggles. Each point of light in your life is when you stepped aside and let Me shine through, until there was more of Me than there was of you.'

May all our quilts be threadbare and worn, allowing Christ to shine
through!

God determines who walks into your life.... it's up to you to decide
who you let walk away, who you let stay, and who you refuse to let go.'

Cindy said...

As you know, people all over the world are praying for sweet Chrissie. Not only am I praying for Chrissie, but for your heart as well.

Anonymous said...

Dear Chrissie,
I just wanted to let you know that you have 2 new friends - Hannah (who is 5) and Emma (who is almost 4). Hannah and Emma think you are so brave and they pray for you every night.

Hannah loves the pictures from your princess party. Hannah and Emma are BIG princess fans - and they love to dress up. We are praying that you will be wearing your princess dress again soon.

Lots of love and prayers! Hannah and Emma's Mommy - Melissa

Kimberly said...

I have just sat here and read Chrissie's story in the past hour and I am in awe at what God has done for her. I am praying, uttering in the spirit to God for this little princess. I will make sure to tell Chrissie's story tonight at church. "He's gonna do great things, I already know!"
-Kimberly

Gary Wayne Hall said...

My name is Gary Wayne Hall and I live in Harlan, Kentucky. I gave my life to God in 1990 and I've been through nothing but misery ever since. I refuse to give up on God, His promises to me, and His calling on my life. I will be all that God created me to be and I BLESS HER FROM THE TOP OF HER HEAD TO THE BOTTOM OF HER FEET AND EVERYWHERE IN BETWEEN. I will write her name on the prayer card in my Bible and pray for her that she will walk out of the hospital and come home on or before May 27 of this year. God Bless.

Suzette said...

What a beautiful baby girl! Praying fervently for her. We sure would like to come to her party and we are believing God is going to do miracles and you will have lots of celebrating!

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