- That Selah's last IV (in her hand) would not go bad. (She doesn't have any other IV's, and she doesn't have her central line, so this is it.) If Selah's IV will hang in there until they can stop the IV fluids and the IV antibiotics, we should be OK. The IV antibiotics can stop once they're able to pull the drains from Selah's skull, but we're not yet sure when they'll do that. Maybe 2 more days. The IV fluids can stop once Selah is drinking enough fluids to keep hydrated. She hasn't drunk anything yet. (She doesn't want anything and won't suck on anything.)
- That Selah's swelling in her leg/foot will disappear and that she won't have any lasting damage to her muscles/nerves/tissues.
- That Selah's swelling in her left eye would disappear, and for overall swelling to be relieved.
- That Selah would continue to be comfortable. So, so, so grateful for her comfort level today, and I pray she'll continue to be comfortable.
- That Selah's shunt would continue to work well and that her brain ventricle and the placement of the shunt would all remain good.
- That Selah will continue to move in the right direction toward healing and ultimately toward home...quickly. :-)
- That Selah would remain fever-free and infection-free.
- That Selah
- That Selah would be able to go home quickly!
- That our kids and us would have peace and strength through this trial.
- That glory would be brought to our Father through His daughter, Princess Selah, and that we would be a light to all those we encounter, particularly shining light on darkness with those who may not yet know Him.
Wednesday, August 31, 2011
Posted by Lorraine, AKA Forever Blessed at 11:39 PM
When they pulled the tube, I was overwhelmed with grief. I heard Selah's scratchy, hoarse cry as she tried to babble, and I so longed for us to have experienced that moment of extubation with Chrissie. So hard, but it was sweet music to our ears to listen to Selah's voice. Thank you, Jesus!
I'm feeling more and more confident as we walk this road with Jesus as our forerunner. The only analogy I can think of would be getting bucked off a horse and being hurt badly, only to have someone force you back on the horse again. In the end, you're grateful to have faced that fear and overcome it. God has us on that journey, and I can't think of anyone better to be holding our hands as we get back in the saddle again.
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Posted by Lorraine, AKA Forever Blessed at 1:21 PM
God blessed us with an amazing nurse, from Israel, who is so compassionate and assertive enough to advocate well for her patients.
Originally the plan was to extubate Selah between 9-10am, but then Dr. George ordered the CT scan. They had removed Selah's auto-drip IV pain meds and pulled the order for Versed since they were wanting to have Selah awake and more active to clear he mr lungs once extubated.
Well, when the nurse saw the CT order, she advocated for Selah to have more Versed to keep her calm in the CT, which is awesome because Selah was having a big fit, thrashing her legs and getting really angry about less pain meds and less happy juice while having a tube still in her throat.
So, now the plan is to keep her intubated for the CT with Versed for relaxation, then extubate after the CT scan.
Whew! Thanking God for our awesome nurse today!
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Posted by Lorraine, AKA Forever Blessed at 10:17 AM
I woke countless times in the night to check on Selah, sing to her, hold her hand, pray over her, and simply let her know I was by her side. She opened her eyes and smiled at me a few times. Precious.
Selah has a lot of gunk in her lungs. They bagged her for aggressive suctioning this morning and got a TON out. That's one of those sights that makes my stomach turn with an instant upchuck feeling. Then I boss my heart according to His Word and cling to my tube floating on His river of peace.
They had to put hand restraints on Selah because of her feistiness. Love my warrior princess! She continues to try to rip out her breathing tube, even with hand restraints. That's my fighter!
They decided to give her some Lasix to try to clear her lungs somewhat, and they plan to pull her breathing tube sometime between 9-10am!
Selah had 102-103 fever in the night, but she's already on IV antibiotics, so they're watching to see if she spikes another fever after her Tylenol wears off.
One really annoying thing is that Selah's room is right across from the supply closet, which has a very large and heavy door which has a very loud and annoying slam each time someone goes in. And each time someone goes out. Which is about every 3 minutes. The slam startled Selah just about every time. Repeatedly. Ugh. That's one o those details that the medical staff don't think about because their baby isn't the one waking, startling, and crying each time the door slams. Nor are they having to confort the baby that is across the hall from the supply room. Every 3 minutes. I think I'll ask Matt to rig something up to keep that door from slamming. Every 3 minutes.
I'll keep you updated on Princess Selah, and thank you all from the depths of our hearts for your prayers. We are truly grateful.
Posted by Lorraine, AKA Forever Blessed at 8:50 AM
Tuesday, August 30, 2011
"We have this hope as an anchor for the soul, firm and secure. It enters the inner sanctuary behind the curtain, where our forerunner, Jesus, has entered on our behalf." Hebrews 6:19-20a
What a sweet reminder as I lay my head on this hospital pillow, longing for sleep, knowing it will be minimal and very interrupted, praying for my baby girl, watching vitals, inspecting my baby's face for pain so I can be her voice since she has a tube down her throat, that Jesus is the anchor of my soul, firm and secure.
That's all that really matters. Jesus is my anchor. He not only has securely fastened me to Him, but He has also securely fastened Himself to me, and He will never let go, no matter how tired I am, no matter how badly I fail Him. We are securely fastened to one another, and He has given me His hope forever and always, no matter what.
Amen! Thank you, Jesus!
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Posted by Lorraine, AKA Forever Blessed at 11:21 PM
The doctors are working on figuring out meds for Selah. Her blood pressure has been dropping too low with Versed (a med that majorly chills people out). They've suctioned quite a bit of "gook" out of her lungs, and they're working slowly toward extubating, bit she has quite a bit further to go before they can accomplish pulling her breathing tube.
Selah also doesn't have a lot of urine output, so they're investigating that. They flushed her catheter, but so far that hasn't helped.
She seems more stable and comfortable than a few hours ago. Or maybe I'm used to things now.
When we first came into Selah's ICU room and the RT started suctioning the breathing tube and Selah was coughing and coughing and there was a flurry of activity, Matt and I felt so sick. We both just stared, almost paralyzed by the memories.
Then I felt defensive, wanting to speak up for those who cannot defend themselves. I wasn't familiar with any of the doctors, nurses, or the respiratory therapist, so my flesh wanted to jump up and defend Selah. I didn't even have a reason other than my unfamiliarity with the team and my momma bear spirit wanting to jump in and make everything calm down. Wow, we haven't been in that same type of intubation scare since we stayed by Chrissie's side, fighting for her. I really dislike breathing tubes. Well, I dislike seeing my children intubated, helpless, realizing how fragile life really is.
I truly felt the precious peace of our Savior after my initial panic. Peace swept over me like a river, a flood really. Thank you, Jesus!
I've only had about 3 hours of sleep since Monday, so I'm exhausted. I feel so very grateful to lean on the One who never slumbers, as I'm held up by the prayer warriors He's placed on our team. Thank you!
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Posted by Lorraine, AKA Forever Blessed at 8:27 PM
Selah also has a lot of gunk in her lungs, so they're suctioning her breathing tube, which causes her to cough, which causes her to cry.
Seeing Selah in this condition is really hard. It looks so much like Chrissie. The suctioning makes me feel like I'm going to vomit. Matt's stomach is in knots. Has been for a few days.
Please pray for Selah to be comfortable, for her lungs to clear, for her bleeding to slow down, for her to be strong and fight so she can come back to play at Forgotten Saw Ranch as quickly as possible.
God is faithful. He is mighty to save. He is our Rock and our Redeemer. He loves Selah more than we do.
Posted by Lorraine, AKA Forever Blessed at 5:59 PM
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Posted by Lorraine, AKA Forever Blessed at 4:02 PM
Selah is doing well. Dr. Harshbarger is still working on Selah. He finished shaping the skull and is now working on placing the plates that will hold everything in place. We were told it would still be several more hours.
Thank you for praying!
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Posted by Lorraine, AKA Forever Blessed at 2:39 PM
Selah will have the back portion of her head/skull totally reconstructed today, as it is a necessary procedure in order for her brain to continue to grow and develop correctly.
The procedure involves an incision from ear to ear, peeling her scalp away from her skull, shaving away extra bone/ridge, cutting the existing skull into smaller pieces (like a jigsaw puzzle), then holding everything in place (in the correct/round shape that skulls are supposed to have) using plates and screws that will dissolve over a year's time.
Dr. George will be protecting Selah's brain and VP shunt throughout the surgery, so he'll be playing the role of her "skull" for several hours today, which is a vital role in the successful outcome of this surgery.
Please pray for no complications (during surgery as well as post-op). Pray for God to guide the hands of everyone working on Selah. Pray for a successful surgery, quick healing, and comfort for Selah. Pray for us (our kids, too) to have His peace that surpasses all understanding. We trust the Great Physician, regardless of earthly fears that are heightened because of Chrissie's journey to heaven.
We are grateful for your prayers and support. Thank you!
Posted by Lorraine, AKA Forever Blessed at 8:01 AM
Monday, August 29, 2011
Friday, August 26, 2011
OK, y'all. I am totally bummed, yet totally excited at the very same time.
The reason I'm bummed is that I'm not sure I'll be able to attend this AWESOME event (due to Selah's skull reconstructive surgery).
The reason I'm excited is that this is an AWESOME event that I want every single adoptive friend, advocate, prayer warrior, church member, and family to attend.
And, to help you get to attend this totally rockin' event, Hope for Orphans is offering my blog readers a 50% discount by using the code BOSSYOURHEART, which will make your registration fee only $49.50.
$49.50 isn't even a fraction of the value of this conference.
Click HERE to see for yourself how awesome it's going to be.
And while you're at it, pray that Baby Selah will be healed enough for us to be able to attend. I would be so thrilled to be able to reap the rewards of so much wisdom, so much help, so much awesome adoption info all wrapped up into one amazing event. I'd sure love to see you there!
Here's a few names of people who'll be a part of this incredible event, just to entice you (all of these people have either adopted, were adopted, are adoption experts/advocates):
- Dr. Karyn Purvis (adoption expert; author of The Connected Child)
- Ryan Dobson (Dr. James Dobson's son; he's adopted)
- Geoff Moore (Grammy and Dove Award winner; best buds with Steven Curtis Chapman)
- Paul and Robin Pennington (Co-Founders of Hope for Orphans; incredible folks)
Posted by Lorraine, AKA Forever Blessed at 7:47 AM
Thursday, August 25, 2011
Selah is an EXTREMELY hard stick, as I've mentioned before. I've had kids that are hard sticks, meaning after 4-5 sticks, they finally get blood. Selah is different. After 10-12 sticks, lots of digging around under the skin (ouch!), and even under ultrasound, they still aren't successful!
Selah was originally supposed to have her blood drawn Tuesday at a local lab in the medical building adjacent to the hospital. (You might have seen my Facebook prayer request.) That fell through because of a silly bracelet/wristband issue (it wasn't waterproof and they said Selah couldn't get it wet...a WEEK before her surgery). So, that lab told us to come back Monday, the day before her surgery.
Well, the hospital called Wednesday to schedule Selah's pre-op blood draw. What?!?! I thought we were doing that Monday at the lab. Well, God put the right person on the phone with the hospital because she was AMAZING. I mentioned to her about Selah being a hard stick, and she scheduled Selah an appointment with an anesthesiologist for her blood draw. (We had to use an anesthesiologist last time, too, but Selah was already in the hospital that time.)
The anesthesiologist ordered Selah to be nothing by mouth for 6 hours prior in case he needed to sedate her. It's a good thing he did because he took one look at Selah and ordered Versed to relax her. He saw the orders for the amount of blood he needed to get, and he decided to just get it from her femoral artery while Selah was under the spell of her happy juice.
Selah did great, the anesthesiologist got it first try, and it was sooooooo awesome for Selah to NOT be tortured.
While it took about 2 hours in the hospital from start to finish, the time was well spent and oh so worth it!
Thanks for praying for sweet Selah! Don't forget to sign up for a prayer spot in her prayer chain (see Tuesday's post for more info). Thanks again!
PS The anesthesiologist told us that there would be no way for a lab to get her blood, so looks like this is the route to take for Selah, at least until she thins up and/or gets some bigger veins!
Posted by Lorraine, AKA Forever Blessed at 4:57 PM
So, after many pokes, many screams, many tears, and much frustration back in March 2010, the nurse decided to call in the big dogs. They brought in the anesthesiology team, and after just two pokes, they were successful.
Fast forward to today, and Selah must get blood drawn for her pre-op lab work. They were going to do it at a local lab, which fell through. The children's hospital called me yesterday, and they made arrangements for the anesthesia team to draw Selah's blood sometime around 12Noon today. I was SO VERY GRATEFUL for the accommodations and graciousness of the hospital. God must have sent a little birdy to some very kind person at the hospital who knew that it was important for Selah to have an anesthesiologist draw her blood.
The down-side to this is that the anesthesiologist requested that Selah have nothing by mouth after 6AM, just in case he needs to sedate her in order to get the blood he needs. (They must get whole blood, and I'm assuming it's quite a bit of it since the anesthesiologist is having us prepare for sedation.) He asked that we try our best to hydrate Selah as much as possible, so we've been giving her Pedialyte unflavored water with her bottles, with hopes of hydrating Selah as much as we possibly can. I actually don't think the hydration was an issue back in March, I think it had more to do with how chubby Selah is, but I could be wrong.
Anyway, I would greatly appreciate your prayers for the anesthesiologist to be able to see Selah promptly upon our arrival, and for him to be able to successfully draw the required amount of blood (on the first try) without having to sedate Selah. And pray for Selah to not feel hungry until after she's able to eat/drink (after her blood draw).
Thank you so much!
Wednesday, August 24, 2011
Our friend, Kaleigh, felt the Lord's leading for her to organize a prayer chain for Selah. (Info for that is below.) A meal calendar for our family will be organized shortly as well (for local folks). We are MOST grateful for your prayers and support; we simply cannot find adequate words to express the comfort we receive from your prayers. It truly is a peace that surpasses understanding, only through the miracles of our Father.
Who: Princess Selah Patterson, age 10 months.
Posted by Lorraine, AKA Forever Blessed at 10:25 AM
Monday, August 22, 2011
Kiefer's best buddy at his orphanage in Haiti now lives in TEXAS!!! Kiefer and Samuel lived at Ruuska Village together and survived the earthquake of January, 2010. Both boys came home to their forever families in April, 2010. However, Samuel's forever family lived in Tennessee, which was not too convenient for playdates from Texas.
Well, Samel's forever family moved to TEXAS two weeks ago! So, Samuel and his parents and brother all came over Saturday night (August 20).
Kiefer didn't seem to recognize/recall Samuel right off the bat (Kiefer was 20 months old when he came home from Haiti), but that didn't stop him from having a blast with Samuel. I sure wish I had an understanding of what was going through Kiefer's brain when he saw Samuel. I wonder if he remembered him? I wonder if he has any memories of life at Ruuska Village? I wonder if he recalls playing with Samuel at the orphanage for hours and hours and hours, every single day?
Posted by Lorraine, AKA Forever Blessed at 7:07 AM
Saturday, August 20, 2011
Posted by Lorraine, AKA Forever Blessed at 2:59 PM