If any of you out there have any experience with VP shunts, please let me know if you've ever experienced abdominal pain with a VP shunt.
Poor Selah has been having horrible stomach pain, to the point of not being able to sleep, day or night. She and I are both exhausted, and I hate to see my little one in pain. I kept thinking her pain was due to her brain surgeries, incisions, adjustments, etc., but now that it's been a full week since her last surgery, I'm beginning to realize that it's not the incisions that are hurting her.
Selah has been exhibiting several signs of severe abdominal pain, and every time I put her to sleep, she wakes within minutes, wrenching in pain, pulling her knees up toward her belly, wiggling and squirming and arching her back, screaming with big crocodile tears. This is not normal for Selah at all.
I called the neurosurgeon's office a few times today to try to discuss the issues with a doctor or nurse. I finally talked to a clinical nurse at 5PM, and she set up an appointment for Selah to be examined in their office by a neurosurgeon tomorrow (March 31) at 1:45PM. Please pray that the neurosurgeon will have compassion, wisdom, and will order whatever tests would help determine the cause of Selah's pain. I would also love to get her quick-acquisition MRI done tomorrow as well (it's currently scheduled for April 5), but I'm not sure if that will be possible. I'd just like to have the doctor take an "inside look" at everything so that I can feel better about how things are working, and Selah can hopefully get relief from her horrible pains.
Before Selah was hospitalized 17 days ago, she was a HAPPY girl. She smiled all of the time, was content, satisfied, joyful, and she slept very well. Now Selah is fussy most of the time, and she is not sleeping AT ALL. Not even at night. She is continually waking up in pain, every 3-5 minutes. It's awful. Poor baby girl. I know that something is not right, given the difference in her personality and sleep patterns, and since Selah cannot tell us what hurts, I must advocate for her and try to get her some answers and relief.
Please pray for Selah's tummy to not hurt, for her doctor's appointment to be productive, and for some much needed sleep. Thank you!
Wednesday, March 30, 2011
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